About Epilepsy
Epilepsy is the most common serious brain disorder among children in the U.S., affecting millions nationwide.
about epilepsy
Why Does Epilepsy Matter?
Epilepsy steals moments, days, and lives. Anyone, at any age, at any time can have a seizure—epilepsy does not discriminate, affecting children and adults alike across all walks of life.
about epilepsy
Why Does Epilepsy Matter?
Epilepsy steals moments, days, and lives. Anyone, at any age, at any time can have a seizure—epilepsy does not discriminate, affecting children and adults alike across all walks of life.
about epilepsy
Importance of Access to Qualified Care
Epilepsy diagnosis and treatment have rapidly advanced in recent years, with scientific progress over the last 20 years surpassing the previous 100. Precision medicine continues to drive this progress, with over 400 known genes causing epilepsy, more than half of which have been discovered in the past five years. New treatments, such as advanced anti-seizure medications, the ketogenic diet, implant devices, therapies, and surgery, have proven effective. These treatments require highly specialized care from doctors at Level 4 Centers.
For children, timely and quality care after seizure onset is crucial for successful outcomes. Access to a pediatric epileptologist, knowledgeable in the latest epilepsy diagnosis and treatments, plays a key role in improving outcomes. Without proper treatment, stubborn cases of epilepsy can lead to lifelong complications, affecting both the individual and their family.
ELAM MALLORY & DR. ADAM NUMIS
As a Care & Cure Fellow, Dr. Adam Numis provided expert care and a thorough treatment plan for Elam Mallory.
about epilepsy
Overcoming the Challenge
Access to pediatric epileptologists is essential for children with drug-resistant epilepsy, as their expertise helps explore advanced treatments, reduce seizures, and improve quality of life.
First Drug
50% of children on seizure medication achieve seizure freedom.
Second Drug
If the first drug fails, there is only a 10% to 15% chance a second drug will work.
Third Drug
If a second drug fails, only 4% of subsequent drugs succeed.
After numerous medication changes, hospitalizations, and even a temporary change in neurologist from my first and current one, Dr. Arthur Partikian, it seemed as though I would have to live the rest of my life with epilepsy. My future looked so bleak. I often wondered, “Am I even going to get through middle school, let alone high school or college? Will I be able to live a productive, worthwhile, and independent life?
Johnson Nguyen
Care & Cure Success Story
about epilepsy
Level 4 Epilepsy Centers
This chart provides an overview of Level 4 Epilepsy Centers across the United States, categorized by their treatment capabilities. The map highlights three key categories:
about epilepsy
Frequently Asked Questions
What is Pediatric Epilepsy?
Pediatric epilepsy is a neurological condition characterized by recurring seizures in children. It occurs when there is abnormal electrical activity in the brain, leading to symptoms like convulsions, unusual behaviors, or loss of consciousness. The condition can range from mild to severe and may have various causes.
What are the first signs of Epilepsy in a child?
Early signs of epilepsy in children can include staring spells, unresponsiveness, muscle twitching, repetitive movements, or sudden jerking of the limbs. Other signs may include confusion after a seizure or unusual sensations like tingling or dizziness. It’s important to consult a doctor if you notice these symptoms.
Does Pediatric Epilepsy go away?
In some cases, pediatric epilepsy may go away as the child grows older, particularly for certain types of epilepsy, such as benign childhood epilepsy. However, this depends on the underlying cause and type of epilepsy. Regular follow-ups with a pediatric neurologist are essential to monitor progress and determine long-term outcomes.
What is the most common Pediatric Epilepsy?
The most common pediatric epilepsy is childhood absence epilepsy (CAE), which typically begins between the ages of 4 and 10. Children with CAE experience brief staring spells where they appear to “zone out.” These seizures usually last a few seconds and can occur multiple times a day.
What are the different types of childhood Epilepsy?
Some common types of childhood epilepsy include:
- Childhood Absence Epilepsy (CAE): Characterized by staring spells.
- Benign Rolandic Epilepsy: Causes seizures involving the face and arms, often during sleep.
- Juvenile Myoclonic Epilepsy: Involves sudden jerking movements of the arms and shoulders.
- Lennox-Gastaut Syndrome: A severe form with multiple seizure types and developmental delays.=
- Dravet Syndrome: A rare but severe type often triggered by fever.
What can cause a seizure in a child?
Seizures in children can have various causes, including:
- Genetic factors or family history of epilepsy
- Brain infections like meningitis or encephalitis
- Head injuries or trauma
- Brain malformations or developmental issues
- Fever (febrile seizures)
- Metabolic imbalances or nutritional deficiencies
What can cause a seizure in a child?
Treatment for epilepsy in children typically includes:
- Medications: Anti-epileptic drugs (AEDs) are commonly prescribed to control seizures.
- Dietary Therapy: Ketogenic or modified Atkins diets may be recommended.
- Surgery: For cases where seizures do not respond to medication, surgical intervention may be an option.
- Devices: Vagus nerve stimulation (VNS) or responsive neurostimulation may help.
- Lifestyle Adjustments: Ensuring proper sleep, managing stress, and avoiding known triggers.
What are the Pediatric Epilepsy treatment guidelines?
Pediatric epilepsy treatment guidelines recommend a tailored approach that includes:
- Diagnosing the specific type of epilepsy through medical history, physical exams, and tests like EEG or MRI.
- Starting with the most appropriate anti-epileptic drug based on seizure type and age.
- Monitoring for side effects and adjusting the treatment as needed.
- Considering dietary therapies or surgical options if seizures are not controlled with medication.
- Providing educational and emotional support for the child and their family.
What is it like living with a child who has Epilepsy?
Living with a child who has epilepsy can involve challenges but also opportunities for growth and resilience. Families may need to:
- Learn seizure first aid to ensure safety during seizures.
- Advocate for the child’s needs at school and in social settings.
- Manage emotional and mental health for the child and family members.
- Stay organized with medical appointments, medications, and therapies.
- Support groups and resources can be incredibly helpful in navigating these challenges.
How can Epilepsy in children lead to behavior problems?
Epilepsy in children may contribute to behavior problems due to:
- Underlying brain abnormalities or seizure activity.
- Side effects of anti-epileptic medications.
- Social difficulties, such as feeling isolated or misunderstood.
- Emotional challenges, including anxiety or depression. Behavioral interventions, counseling, and support groups can help address these issues.
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